John,
Thank you for replying back. I feel like you do but I am also just tired of it all. I do have good days. I think I might have found a connection with my recent flair up. Sometimes I get sores inside of my nose. Just out of the blue. And sometimes on the gland of my neck will swell. I’m wondering if when I have something in my body go haywire if that is not causing my pouch to have issues also. It’s just a thought. I know it’s all about inflammation. So that was my thought. I am so sorry for all you are also going thru. I won’t have a defecography. I just don’t think I could do that. So I will continue on with my Canasa and when I have bad days I just rest and take it easy. I will say I don’t go to the bathroom anymore as much as you do so that should get better for you. Do you have a bidet? I have a spray bidet. Best thing ever. At the beginning I used Dibucaine for butt burns and discomfort. There is a generic for it. I do agree it’s tiring and exhausting. The worse part I hate is being so tired. But I am alive. And still trying to go on with life like you. Please keep in touch if you find anything that works for you and might help me. Thanks for your support. Things will get better for you also it just takes time.