Skip to main content

Crohns with jpouch Fistula

Has anyone had a successful ileostomy reversal with a closure of a fistula in their jpouch.  Specialist wants to excise my pouch and anus.  I was taking Remicaid to heal the fistula and developed drug induced lupus. Now on Entyvio. Hoping my j-pouch fistula will heal and it can be used again.  I am terrified of having my anus removed and the male complications that come with pouch excision. Poor quality of life with ileostomy, lupus, and Crohn’s disease.  I want my life back.  Going in for sigmoidoscopy next month to see if fistula has healed and also to check for inflammation.  I went 28 years with some pouchitis and an anal fistula surgery.  Last year went to ER fir peritonitis and sepsis. Looking fir advice from anyone with a similar diagnosis.

Original Post
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×