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Reply to "Crohns or diversion colitis"

I have had a Pouch with Crohn’s Disease for a long time and in my opinion the pathology report should not necessarily be effecting surgical planning. First of all I have had numerous diagnostic tests and most of them are inconclusive with any reasonable degree of medical certainty and therefore highly unreliable. What is concerning them is the fact that they are seeing inflammation in your Pouch and what that might represent. It isn’t necessarily Crohn’s or diversionary colitis (unless it’s just in the rectal cuff, then the latter diagnosis may apply). Where is the inflammation? It could be ordinary Pouchitis, which might be treatable with a short course of antibiotics and not a valid reason to change surgical planning. In any event after full disclosure it should be your decision anyway. But these pathology reports are notoriously unreliable especially if all they did was a Prometheus blood test.

If it’s inconclusive or pouchitis, a decision to delay but not cancel surgery while it is treated is reasonable.

Last edited by CTBarrister
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