Dear Laura,
I totally empathize with the life you've had with UC and post-operatively, including hip replacements so young.
I had two separate "attacks" of UC. The first was in the early 1990's (in my 50's)and I went into partial remission for a couple of years. Then it came back with a vengeance which led to getting the pouch. Of course I worried about the impact of prednisone on my bones and mine have lost serious density. I ultimately had to give up most activities that threatened them.
Two years ago my doctor prescribed Forteo, which is a drug for treating osteoporosis and is incredibly expensive. I've also used Prolia, which is also expensive.
I'm not sure either helped but I was willing to try anything that might let me live a moderately active life and not worry about breaking bones.
The other problem you mention: blockage. I've had three episodes. The first time it happened I was thrilled that I hadn't pooped for a long time, until it started to hurt and I ended up in the emergency room the hospital with the NG tube.
On a positive note, you and I try hard to keep a positive attitude. I think that's the best medicine. You travel (as do I) and enjoy animals and have a supportive husband. I'm divorced but I have two great children and 4 fabulous grandkids. They all understand when grandma makes a mad dash for the bathroom.
Toni
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