Reply to "crohn's disease in the pouch"

LauraLeeMember

I have a JPouch for about 5 years with more downs than ups. No quality of life in the last 4 years. Pouchitis, an obstruction that lead to big surgery and 2 weeks ago a blockage that put me on the hospital for 10 days with the awful NG tub. Now after a number of tests and for the second time by biopsies came undetermined. Some doctors said I have Crohns, other ones, just inflammation on my small intestine but I’m so concerned I can’t find the formula to keep me minimally healthy to just keep living my until now, miserable life. I’m pretty desperate. Now, I’m on 40 mg of Prednisone daily (going down 5 mg weekly for 2 months), and then a biological drug (except Humira and Remicade because didn’t work on me in the past.

Anybody with a similar experience? Is this something common on people who have JPouch? Any advise or opinion will be so appreciated.

Laura

4/20/199:37 PM

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