Reply to "Crohn's Disease and J-Pouch"

ElmerFuddMember

Our GI clinic at Children's Mercy in Kansas City maintains that diagnosing IBD in children is tricky and often unreliable. They tell stories of kids being diagnosed with UC, and then a couple years later being diagnosed with CD. Apparently, as kids with IBD grow, the disease can apparently present itself in different ways. They like to be as sure as possible of a diagnosis with kids before proceeding with j-pouch surgery.

I was always diagnosed as a kid with atypical IBD - they would always tell me it wasn't CD, but that it didn't present as typical UC either. I didn't really understand at the time. For my daughter, they ran every test they could to give them a level of confidence that she had UC. So far, so good for her and her 3 1/2 year old j-pouch

Steve

9/3/143:26 PM

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