Thanks all--I am registered for the self-employment benefits but they are only for 15 weeks--they are for temporary illness whereas this seems like a whole new way I'm going to be living so I am thinking long term. I teach music, so it is a weekly commitment and not something I can do more/less of as needed--I either work or I don't and when I don't, I have no income. It sucks. I also have a 5 month old baby to care for. I just can't believe with all the medical wonder of re-organizing our organs that there is nothing they can do about this. Te Marie--your situation sounds a lot like mine, I'm sad to hear it hasn't resolved. I'm also very disappointed with the lack of compassion from doctors of the effect this has on our lives--no one has even addressed the issue of long term work management, it's like "oh well, there is nothing we can do" and no support offered going forward for how to cope, how to manage work, programs available etc.