After seeing the surgeon today, I am trying, as a last resort, Opium Tincture. We are giving it a week. If no positive results, then back to a bag. I haven't decided to go permanent or temporary end Ileostomy. Fingers crossed that this works as I do not want a bag the rest of my life.
I did have a scope today and no Pouchitis. So at least that can be eliminated as a possible cause. I had a Stricture he dilated so I should go easier should things get back to a more normal.