Skip to main content

Reply to "Constant Toileting - what are we missing?"

Nah when you get sick ((for me anyway) you are just like everyone else. A cold/flu stay in your lungs/sinuses, etc. and the  pouch continues to works fine. The only exception is a GI bug as we tend to get dehydrated and have electrolyte issues more than people with colons. Sometimes when those are out of whack you can feel pretty miserable.  I would be remiss to point her problems on constantly fighting something-it seems an awfully long time to just be bouncing between viruses. I take methotrexate for my joints which is also an immune suppressant and it has zero effect on my j pouch or even how often/severely I get sick. I know that isn’t the same drug your daughter is on though, so I don’t want to mis-speak. 
I agree with Scott that really looking hard at your diet might help. I love whole foods, but alas they are pretty hard on my pouch! I often joke with my doctor that I’m the perfect patient who can never be because if I had a choice I’d eat a pile of fresh fruits and veggies, beans and legumes, micro greens, grainy breads,  all the good stuff they beg most patients to eat more of, but despite the preference, I can’t eat them!

Last edited by duck11
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×