Thank you everyone. I appreciate your kind words and support! xo
Great ideas and suggestions. we are going to try the "lactose-limited" diet. It's interesting to hear the problems people have encountered with lactose since getting a pouch. Although the Visbiome states it has very little dairy - basically just made with the 'culture', we have stopped it to see if it makes a difference. Since she only recently started eating the cookies, and hasn't had very many, we will continue with them. As of today and yesterday, the past two nights she has only been up to toilet twice, each night!! YAY! I'm letting her sleep in to catch up on much needed rest.
Winterberry - We have had Dietician support for a long time, and it wasn't very helpful. We expressed we cannot eat smoothies, and it appears to be their go to. We have stuck with our whole foods lifestyle, although because she wasn't eating for so long, we were allowing her to eat whatever she could - including all the sugar-laden-crap they give you in hospitals (ice cream, pudding, jello) - and it appears her tastes buds have changed a bit. Although you can't gain weight on vegetables, we are trying to provide her with a lot of high-calorie carbs (breads/pastas). She is thankfully not celiac or gluten sensitive.
Still Standing - Trying to take any kind of "textured" drink is difficult for my daughter - I might as well fight her in a wrestling ring 
( I might look into ways where I can incorporate psyllium into home-baking though to see if that makes a difference. For now, her resistance against the cookies has subsided, so we will continue with them to see if the make a difference.
Duck 11 - She was lucky - when she had an ileostomy bag she could continue to eat everything she always did. Many people in her ostomy support group had to change their diet. When she was needing a feeding tube for 5 months, the best feeding tube formula had meat in it, and she knew she had to have it. She is vegetarian by choice and has been for almost 5 years.
A QUESTION FOR EVERYONE - when you get/begin to get "sick" (cold/bug/flu/gastro issue etc), do you feel it in your pouch or through increased bowel movements? I wonder if she is just constantly fighting off something, since she is on an immune suppressing drug??
I REALLY APPRECIATE all your help! xo THANK you!