Mucus sucks. I had issues on and off with the mucus for a couple of years before I built up some courage, had the J pouch removed, and the Barbie butt formed in 2019. My experience with the Barbie butt has been amazing. My rectal region has always been an on and off source of problems for me since my J pouch was formed in 1992. Once I developed fistulas in 2015, it became unbearable. That is when I had a loop ileostomy formed to bypass my J pouch. Some weeks would be fine with no mucus so I thought I was in the clear. Next thing I know, I am out somewhere and my pants would be soaked with mucus. I started wearing pads all the time. I think the mucus has a mind of its own...darn intestines doing their job Producing mucus that I didn’t need any more. Uggghhh.
Do you still have your J pouch in or did they remove it and not close things up? I hope you can find someone to give you an insight on how to tackle the mucus issue.
My surgeon decided to keep my ileostomy a loop because the stoma really is perfection EXCEPT now I have problems with the little bit of intestine I have left that once connected to my J pouch. I have a lot of mucus drainage from that tiny portion of my intestine which comes out the stoma hole flush to my belly. I don’t know if I will ever be free of mucus from my life. I have a doctor appointment in September so we will see if there is any hope! So frustrating.
Best of luck finding a solution!!!