Hi JHendrix-
I am so sorry to hear of your rv fistula and all the associated problems. I can identify, but you have hit the extreme with your 'botched' surgery, new diagnosis and painful skin symptoms. I also had an rv fistula with flap surgery, plug surgery, seton placement and finally, an ileostomy coupled with biologics to heal the fistula. It did not work for me. I had my jpouch removed first. Then a urogynecologist did a different sort of flap repair and a colorectal surgeon did the mucosectemy. It seems to have worked as far as I know. But at this point it doesn't matter since my jpouch is gone. I was so tired of dealing with the rv fistula and having stool pass through areas it shouldn't, I opted for the ileostomy knowing deep down it was probably going to be permanent. But that was a choice I made without seeking further surgical repairs and continued biologics. For me, I was tired of it.
I truly hope you can heal and continue to gain strength. Your post is extremely helpful for anyone that has an rv fistula seeking treatment options. Healing thoughts sent your way! Please keep posting!