Sometimes I find these posts kind of just quit and I'm left hanging...what happened? how did this situation work out? So in case anyone is doing a search re rv fistulas and come across this, I'll provide an update. Its now 8 months later. I had the flap advancement surgery in early June 2016. Almost immediately there was air and then stool in the vagina. The plan was then to do a diverting loop ileostomy to give the fistula a chance to heal without 'activity down there'. I had the ileostomy surgery at the beginning of July. Unfortunately the surgeon had a momentary lapse of clarity and mixed the two openings up. The inactive mucus opening sat nicely in the center of a beautiful stoma while the active, stool spewing opening was flush against the skin at the bottom of the stoma. The result was that it was impossible to get that bottom one sealed and I had constant stool on my skin. Very painful and frustrating. It took a while to see what was actually going on but finally a doc saw it while active. I had revision surgery in early August. The plan was to recover, get strong, do another MRI to see if another flap was in order. The recovering healing getting strong part has not yet worked as I've now been diagnosed with pyodermal gangenosum which apparently is a rare (what makes me so damn special?) an autoimmune response on the skin causing ulcerations. Excruciatingly painful. The weepy sores have made a seal impossible. I'm about to start on topical steroids today and, if not successful, oral I guess. So that's where its at. In the middle of hell as far as I can tell. I have been having conversations with my immune system...it needs to learn to settle down a little. To sit on its hands, bite its tongue for a bit before going into hyper vigilant over reaction. Will keep this updated in the event it resonates with any others' experiences. I would sure love to hear other's experiences that are similar to know what I might expect. (This is way too long post I know)