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Reply to "Colitis/Jpouch and Ancylosing Spondylitis (AS)"

You are sort of stuck between a rock and a hard place, with no good choices. If it were me, I'd see my rheumatologist and work out a plan where you have a trial with NSAIDs (maybe Celebrex or Mobic or Relafen), understanding that you'd have to discontinue if you developed side effects. How about sulfasalazine? It is primarily useful for peripheral arthritis, but there is some evidence for some effect with the axial disease. I do take it along with the Cimzia and my pain meds.

 

My thoughts are that if you tolerate the NSAIDs it could improve your quality of life and perhaps by the time you develop issues, they will come up with new treatments. For me, it was important to be functional, even if there were risks. My life is not perfect, but it is good enough!

 

Here is the meds currently being used.

http://www.spondylitis.org/Lea...cations#.VfjWCcRHarU

 

Jan

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