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Reply to "Chronic pouchitis or post-colectomy Crohn's?"

I am like most of you having to deal with Chronic Ileitis.  I have had pouchitus before and successfully treated it and no problems now.  I should start by saying I have had my j-pouch for 18 years.  I have had several adhesion removal surgeries and 2 resections of the small intestine.  My recent routine pouch scope however showed all is well except for my ileum being very inflamed, leading my doctor to think I have developed crohns .  He ordered and IBD panel blood test and I tested negative for both UC antibodies and Crohns antibodies but did test positive for P- ANCA.  I have never heard of that.  My doctor is sending me to a specialist in immunology and I just know they are probably going to start discussing biologics.   I am currently takin a steroid to help with the inflammation but want to get off it asap.  I have had several blockages recently and doc says it is because of the opening to my jpouch being stricture and inflamed.  I don't know what to do.  I haven't seen the new doctor yet but should get it to him soon.  Has anyone else had anything similar happen or have any information on P ANCA.  I forgot also I have recently became very anemic.  That is actually the only thing that is making me feel bad.  Any thoughts or advice would be helpful



Thanks

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