I am like most of you having to deal with Chronic Ileitis. I have had pouchitus before and successfully treated it and no problems now. I should start by saying I have had my j-pouch for 18 years. I have had several adhesion removal surgeries and 2 resections of the small intestine. My recent routine pouch scope however showed all is well except for my ileum being very inflamed, leading my doctor to think I have developed crohns . He ordered and IBD panel blood test and I tested negative for both UC antibodies and Crohns antibodies but did test positive for P- ANCA. I have never heard of that. My doctor is sending me to a specialist in immunology and I just know they are probably going to start discussing biologics. I am currently takin a steroid to help with the inflammation but want to get off it asap. I have had several blockages recently and doc says it is because of the opening to my jpouch being stricture and inflamed. I don't know what to do. I haven't seen the new doctor yet but should get it to him soon. Has anyone else had anything similar happen or have any information on P ANCA. I forgot also I have recently became very anemic. That is actually the only thing that is making me feel bad. Any thoughts or advice would be helpful
Thanks