Chronic pouchitis or post-colectomy Crohn's?

KarenchaseMember

Hi all, I was diagnosed with chronic pouchitis about 3+ years ago by a GI I trusted, after working with him for years, before and after my surgery. I moved about 2 years ago and started seeing a new GI. He is a local hotshot, and I was referred to him by my former, trusted GI. I started Entyvio for chronic pouchitis after doing the antibiotics merry-go-round for a year or more. My new GI has kept me on Entyvio, but even before he scoped me for the first time he told me he thought I have post-colectomy Crohn's, not chronic pouchitis. In some ways, it's semantics, since the treatment is the same, and I have suspected he said that partially to ensure I will continue to get insurance coverage for Entyvio. But for some reason, this really bothers me. Should I just go with it? It makes me uneasy, for a few different reasons. I value your opinions! Thanks

12/21/2012:23 AM

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