Reply to "Chronic pouchitis for 16 years"

SteveGMember

Hi dave,

as I wrote to CT I have already been trying stelara, but I didn't benefit from it.

Although I have a constant moderate inflammation I usually get along with 6-8 BM per day (often no BM during night, I take one pill of loperamide before going to sleep, and eating nothing after 6...7 pm seems a good idea).

My GI doc suggested now to take the antibiotics every month for 5 days, even if it would not be really necessary. I notice little side effects from them, but in the normal dosage I get an oedema in the legs after several days. That's probably why my weight goes up so fast.

As you said you may be lead to ignore chronic pouchitis if you get along and doctors are also helpless. It is only since the last 6 years that I visit a local GI doctor regularly. Before that I took no budesonide and had about 8...10 BM per day.

"Viel Glück" also to you (hope the German vowel doesn't get shredded)

Steve

7/8/209:08 AM

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