Reply to "Chronic pouchitis for 16 years"

feeleydMember

hi steve, i had colectomy in 1998 and have had pouchitis since 2004. i was always going to the toilet 15-25 times a day (4-6x at night). but i managed. for the first 10 years i just ignored it (part my fault and part fault of passive drs). but then i started cipro like you. i recently started stelara w/ budesonine in october 2019. by february i was off both budesonine and cipro. my toilet stops have gone down to 8-12 a day with usually only 2 during sleep. probably the biggest notice i had re: how it is working was i just went for a couple 8-10 hour hikes in the mountains last week and could had no toilet stops and no sever cramping. so i would say -- check out stelara.

of course i have some other issues re: chron's. i.e. the scar tissue from surgery is increasing and i have developed the lung condition bronchiactasis.

so viel gluck. dave.

7/7/2011:58 AM

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