Reply to "Chronic pouchitis for 16 years"

CTBarristerMember

@SteveG posted:
But I have to try without the antibiotics again.

You actually don't HAVE to try, and as long as you are feeling good, I would not go cold turkey but try a slow wean and see what happens. A slow wean is necessary/mandatory for the Entocort/Budesonide.

I was never off antibiotics for well over 20 years. I would try to go off for a week and get really bad urgency and frequency and go right back on. After a while I stopped trying. If a stove is hot one does not keep putting his hand on it.

I was finally able to slow wean off antibiotics with Remicade. I was surprised I was able to do it, but its now been over 3 months and I am OK, after 20 plus years of continuous antibiotics in dosages higher than what you are taking.

You can possibly bide your time with the current regimen for a bunch more years until new treatments come along. As long as you are feeling good that's what counts. And get scoped every year.

6/30/207:23 PM

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