Skip to main content

Reply to "Chronic pouchitis for 16 years"

CT, perhaps I should have said that I "want" to try without antibiotics. On the one hand I'd like them to stay effective and on the other there may be some things I can do better. The cholestyramine is something I already tried in the past, but only for a short time and not directly after an antibiotics reset of the microbiome. So beginning today I'll see where it gets me.

I'll continue with the Entocort as it has proved to keep the inflammation on a lower level and stabilize my health. And if things go wrong I can return to the antibiotics, I have them at home for such a case.

My scopes are about once a year, it's always the same story. Astonishingly in the last part of the ileum inflammation is a little more severe than in the pouch. I'm curious what the next result will be like, now that I use the antibiotics more often. No doctor ever told me to have antibiotics for a longer time, except once for 4 weeks Flagyl before the therapy with VSL#3. Flagyl alone was not nearly as effective as the combination with Cipro.

But you're right, buying time is a strategy and there are always advances in IBD treatment.

Steve

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×