Steve,
I fall into the group you mentioned that had inflammation in the whole colon before it was removed. I could only live with UC for 20 years before my colon was removed (dissolved in my surgeon's hands). What I have now is better- much better quality of life than when I had UC. I feel like I traded up in diseases from UC to what I have now (chronic ileitis, Crohn's or choose your label). I also have never had bleeding with the pouchitis/ileitis whereas I had severe pain and severe bleeding with UC. It's definitely a trade up situation for me.