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Reply to "Chronic pouchitis/flagyl/PSC"

@LaurieK714 posted:

I was thinking about it. My GI had reached out to the surgical team. Before I could even meet with them the Pandemic hit. Nobody seeing any patients,at that point. Since the Pandemic I have had other ongoing health issues. One being Streo B which attacked my tonsils. Right after Ibturned 60 I had them removed. It's been a tough recovery followed by brain swelling from the Cyberknife and landed me in the ICU for 4 days in Sept. Just got out of the hospital a week ago for a kidney stone too big to pass. Stent out in and now I have 2 more procedures...1 to break up the stone and 1 to remove the stent. It's ALWAYS something. Can't even think about another surgery right now.

I am sorry you are suffering soo much! Sometimes we have big trials and tribulations in life. I know its not fair but I believe you can overcome anything sent your way, do not let anything beat you because you are strong obviously, I know you can get through this. If you need an ilesotomy in the future, I know you will rock it and be cool with it!

For kidney stone prevention, I would ask your doctor about putting you on "Pottasium Citrate, 1080mg 4X a day (1 pill Every 4-6hours)* My dad is on that to prevent big kidney stones and he has been fine with that dosage for years! He had really big kidney stones too and that took them away and prevented them, its definitely worth it, and drink plenty of water too

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