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Reply to "Chronic pouchitis/flagyl/PSC"

Very sorry to hear about the menengioma.  I alternated between Flagyl and cipro for several years until it just wasn’t as effective anymore.  Shen put me on tindamax and that helped for awhile.  But the latest and most successful drug for pouchitis patients with PSC seems to be Vancomycin.  Dr Shen put me on Vancomycin in August and I have been doing very well.  Pouchitis seems to not be an issue and my liver enzymes were totally normal for the first time in years when I had them checked last month.  
I was told that Shen is advising all GI docs to prescribe it indefinitely for all patients with Pouchitis and PSC.  It is an expensive drug though so hopefully your insurance will cover it.

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