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Reply to "Chronic Pouchitis - at what stage do people seek treatment?"

Thank you, that's interesting.

I cope quite easily at the B) level, although going to the toilet so often can be a pain......

I guess with full-time antibiotics, I would be worried about how they affected the immune system long-term.  I would also need quite a constant dose of VSL3 to restore good bacteria. 

I know of, Ciprofloxacin, Metronidazole and Refaximin.  Refaximin can only be prescribed and collected from a hospital as it is so expensive and is not as good as the former two.   It is the preferred antibiotic for long-term use at my local hospital; however, it is just a hassle to get hold of I stopped.

Are there any others you would particularly recommend?

Thank you once again. 

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