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Reply to "chronic pouchitis-Antibiotics (Levaquin)-Poucher from Shanghai"

ASDFQWER,

That's exactly why we should all be careful and not running to experiment with anything that is proclaimed as the soon-to-be-discovered cure of pouchitis.  I have seen a lot of this in the past, not just oregano oil but other substances and herbal remedies being put out as a much better and safer alternative to antibiotics or biologics.  If they were in fact better and safer alternatives, they would have gained traction and you would hear knowledgeable doctors discussing them.  It concerns me a bit because a lot of people coming on this board are not doing well with the Pouch or controlling their inflammation and in their despair, they are somewhat willing to try something "outside the box."  And those people become vulnerable to posts of some new thing that will purportedly eradicate pouchitis.  Oregano oil is just one example of this.  I mentioned it because a lot of people seem to think if it is herbal and natural it can't be bad for you, or if it's "food grade" it's safe to use.  All of these things can be intelligently discussed with medical experts who know your personal medical history and issues. A lot of these things can interact with medicines we are already taking; this is something your doctor will likely know.  I have many times been told to stop taking medications, eating certain foods or to consume a certain diet because of the treatment I am having.

The other thing is people are wanting to find a risk-free treatment alternative and usually there isn't such a thing.  And even these herbal remedies have risks, as previously mentioned.  And often you don't know what they are because they are not commonly intended to be used in the way they are being used here, as a treatment for IBD.

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