Mike.Sos posted:Scott F posted:Hi, Mike. That’s a tough situation. Do you think the Humira is doing *anything* for you?
One thing you could try is dramatically reducing all carbohydrates. Some folks with Chronic Pouchitis get a good result from that, but it takes determination and patience.
Another thing that might help is VSL #3. I take a maximal dose, and it seems to help me substantially.
Finally, are you using any soluble fiber, like Metamucil/psyllium? That doesn’t cure pouchitis, but for some people can help a fair amount, by bulking up the stool.
I actually verified that the Humira is indeed working with a blood test not covered by insurance. I'm reluctant to remove anymore carbohydrates from my diet as my body weight rapidly decreases if I don't consume enough. I also tried VSL #3, Metamucil, and psyllium husk ask well but had no success with any of them either.
Did you try Psyllium Husk (Raw) or the capsules? If you haven't tried the Psyllium Husks (are a soluble fibre derived from the seeds of Plantago ovata); try some, mix a teaspoonful with a juice, see how that works.