Reply to "Chronic pouchitis"

Scott FMember

@dr posted:
I seem to keep pouchitis. I have failed Cimzia, Remicade, and Entyvio. I'm currently on Stelara but it doesn't seem to be helping. Have been on flagyl and cipro. I have also had a jpouch redo. Any suggestions or doctors I could see for help?

This sounds very difficult, dr. Has anything helped at all, even for a little while? Have you tried high-dose probiotics (e.g. Visbiome or VSL #3)? Have you tried a very-low-carbohydrate diet? Have you tried any other antibiotics, like rifaximin? The probiotics helped me, and continue to do so, but I didn’t see much benefit when I tried the very-low-carbohydrate diet.

9/20/202:27 PM

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