Skip to main content

Reply to "Canadian jpouchers question!"

@Scott F posted:

Most J-pouchers have no particular remaining disability, and thus require no particular support. Things can go wrong, of course, but they’re generally quite treatable.

I cannot tell you how wrong this is, at least from my perspective. While there is a high satisfaction rate with the procedure, complications in one form or another are not uncommon. I would say I’m infinitely more disabled with the pouch than I was with the ileostomy (across all metrics including functional, QoL, missed work, and health care utilization). Yes I still drag my ass to work but only after spending 100/400 past days in the hospital and the complications keep rolling in, many of which are not so easily treated.  Still missing work days for never ending procedures. I never claimed anything for the bag (live in the US) but I think you Canadians should be entitled to the same dispensation if you have a pouch, particularly a problematic one.

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×