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Reply to "butt issue"

What did your surgeon say? You raved about their after surgical care, so I assume they are on top of this too? Yes, I agree with Sharon, it can take up to a year or more to fully heal. I ate a very very basic diet for the 1st year. If I introduced anything to gassy or fiber etc it was too painful. Then, year 2 I added more foods very slowly. Even smoothies caused me problems sometimes. I think too much sugar. I also did not have any lactose. Cooked cheeses seemed ok once in a while.

Did you have the camera endoscopy? You'll have to have the camera pulled out the pouch via a scope since it is too big for the cath holes. But, it's a great indicator of the complete digestive track.

Have you tried to hitch yourself up to the constant cath for a few days. For some reason, sometimes a body will simply reject the way the poo flows even though the inside of pouch is fine. It may give you some relief occasionally.

Also, because the bladder sits very close to the pouch, sometimes all the pressure gets the nerve endings/muscles/whatever (especially after numerous surgeries) and normal gas pain becomes excruiting. bladder is constantly irritated by my pouch so I pee alot and/or leak. Add to that the uterus. It was very difficult for me all those years - I finally got my uterus out at 54 and only because post menopause I was having lining thickening issues. I wish they would have taken it out sooner. Lot of less groin pain. I feel the outside of pouch is sensitive (I too have no pouchitis or any internal pouch issues.)
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