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Reply to "butt issue"

I have tried to clamp but it is weird, if the tube is in my pouch gets mad if it can't drain. I get stool and gas right at the valve and it moves around with loud sound and it doesn't feel good. I personally think something is off with my valve, the thing always hurts if the tube isn't in there. I guess I need to bug people to do more to figure this thing out. The last time I went into the local kpouch surgeon he said it was twisted inside pretty good. The tube for a week straightened it out now same crap again but I can get it in. I wore it for 2 days so see how it is later on. Tomorrow I will have to call for an appointment.

I might just fly to see my BCIR surgeon or drive (if I feel like doing the 20 hr drive) and maybe he can do more for me.
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