jpouchman123! posted:Hello my fellow Jpouch people... A little history - I fought UC for 15 years before I had to have surgery - suffered through 3 surgeries to finally get my Jpouch. I have now had a Jpouch for 3 years and I still suffer with but burn. The pain is often horrible; this makes me sometimes wonder if I should have stopped at surgery #1 and gone with a Ileostomy bag. I use a bidet to wash off after every BM, pat dry and use Calmoseptine. If I am very careful with my diet - avoiding red sauce, anything spicy - some days it is not so bad; however this is still a daily struggle. Just wondering if I am missing something; anyone else still in the same But Burn boat?
I realise this is an older post, but have you tried taking Metamucil (smooth) right before main meals? I found it provided a cushioning effect, reducing the acidity of BMs and also creating a gel that is less irritating to pass. If you search my posts you will find detailed info on how I used it.