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Reply to "Bowel blockages and Doctors"

Oh I feel this, vent away. I was the “mystery bowel blockage” person too for two years of hell, back and fourth to the ER, unable to eat, etc. Doctors sometimes would say “maybe it’s a blockage”, and other times it was exactly what you got or being told it’s in your head, or worse, sometimes accused of being a drug addict. Anyway, long story, but after 2.5 years I accidentally found a surgeon with compassion who, only going in a hunch that my j pouch wasn’t functioning,  operated and discovered I was so full of adhesions that my j pouch no longer functioned. It had bowel twisted and trapped underneathe, and the pouch itself was twisted. How this stuff doesn’t show on the bazillion CT scans I had, I’ll never know. Anyway, keep fighting for answers, I know it’s so hard. I did have a test called a sitz mark test that seemed to confirm her suspicions a bit if that is helpful. These little radioactive beads go through you and when they got to my j pouch, they never left, which is why she thought a functional/adhesion issue.

Last edited by duck11
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