Pouchomarx, that's amazing! You've been through a lot. The Cleveland clinic, Dr. Lavery, also saved my life in 2002. I had toximegacolon and perforation, sepsis, the works. Now I have continued pouchitis, which is how I found Dr. Shen.. but haven't seen him for 6 years due to insurance. I was on remicade, that worked for 10 years, just tried entyvio for 6 months and now have fistulas everywhere .. and chrons of the pouch. I don't want to lose my pouch.... we are trying humira, since remicade worked and it's also a TNF blocker.. I am working on appealing my insurance because I know CCF will have more options.. continued luck to you