I know that it has been a while since you posted this, but have you been tested for the MUTYH mutation? I was diagnosed after a colonoscopy for rectal bleeding. I had hundreds of polyps and an adenocarcinoma. Genetic testing for this showed lifetime risk of colorectal cancer was 80%. It is similar to FAP in that you can produce 100s of polyps. I actually had 2 of the mutations and was diagnosed with rectal cancer last year. It increases your risk for small bowel and gastric cancers as well and surveillance is required with an EGD periodically. Could his be contributing to your polyp formation? Prayers your way!