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Reply to "BAD side effects from Cipro. Any good alternatives to Flagyl and Cipro long term for recurring pouchitis?"

Tracy Bug thanks for posting on this. You've put the puzzle together with a re-exposure, as did I.

MUCH more awareness is needed amongst us Jpouchers who can be prescribed a lot of flouroquinolones and therefore represent a higher risk group for experiencing these awful adverse effects aka FQAD or 'flouroquinolone associated disability'. sadly, when we start getting any of these well documented side effects, they are usually attributed to an autoimmune/ IBD type cause and not the medications, which the FDA now finally acknowledges can cause disability due to the severity and long term nature of side effects. Based on anecdotal reports, it seems most doctors do not seem to recognise these side effects and they extend way beyond Achilles pain...

The fact is, that even extremely healthy people are taking even very short courses of these drugs for minor issues all over the world and many are reporting becoming partially or completely disabled. There are tens of thousands of them online supporting each other on various sites, if you look up on google or Facebook ' flouroquinolone toxicity' you will find them.  

Here are some links for your interest. Plenty of peer reviewed studies in the floxie hope link.

http://www.fda.gov/Drugs/DrugSafety/ucm500143.htm

https://floxiehope.com/fluoroq...nes-links-resources/

https://www.amazon.com/gp/aw/d...WOtyL&ref=plSrch

http://www.medicationsense.com...Qreactions042011.php

http://www.medicationsense.com...cles/2014/letter.php

myquinstory 

Please feel free to get in touch, would be happy to connect with you.

best of luck recovering and getting on top of pouch issues, agree rifaximin may be good and a lot safer. All quinolones, flouroquinolones you may want to steer clear of the whole classes of them to be on safe side

bestvwishes 

Last edited by claire
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