Hi Momma. My surgery to remove the colon was about 16 years ago when I was 15. I had a 3 step surgery. I was pretty healthy up until 3 years ago. The most recent surgeries were for excising the j-pouch as I had extreme inflammation and an inoperable stricture unless the whole pouch had to be taken out. My stricture was right at the pouch inlet. I did try to have it dialated, but the stricture closed up almost immediately. Structurally, the small bowel made this huge u-like shape dip so that food was unable to pass through anymore.
I hope your son does not have the complications like I had after surgery. Apart from the nausea, I am not in any pain. I travelled for the first time in years since my last surgery and had the best fun I’ve had since becoming sick.
You’ll never know what the outcome is until after the surgery. Sometimes you just need to take a leap of faith so that your son will get the quality of life he deserves.