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Reply to "Bad news - So disappointed"

I had my J pouch removed and a BCIR (modification of a K pouch) created.  Due to dense adhesions from prior operations, pouch removal took longer.  Everything was done in one operation and the surgery was successful.  My appetite was poor after returning home and there were a number of foods that I did not want to eat.  I lost 40 pounds.  A couple of months later, my appetite improved and I regained as much weight as I desired.  I soon was back to a normal diet and was doing all the sports and physical activities I wanted.  Getting the BCIR instead of an ileostomy was the best choice for me.  Either way, your son’s appetite should improve after he has had surgery and a short time to recover.

I can fully understand your son’s feelings about getting a permanent ileostomy instead of a continent ileostomy since he had good results with it and has had no experience with a continent ileostomy.  J pouch removal and creation of an ileostomy should enable your son to regain his health and a good quality of life.  At a later date, he could decide to get a K pouch or a BCIR if he so desires. 

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