Hi Momma. Sorry for the confusion. The first surgery I had in July of 2018 was to create a loop ileostomy to let my j-pouch rest and for the inflammation lessen around the organs. The surgery in December of 2018 was the j-pouch excision and permanent end ileostomy. My surgeon had decided at the time that it would be better for my system to heal first because of the inflammation being so bad. What should have happened was during the time I was waiting for the j-pouch excision surgery that I would be able to eat and heal. In the end, I am still unable to eat. I have violent chills and nausea after having a few sips a juice.
I am wondering if he would benefit from drinking something like Ensure. In Japan, I was drinking something close to Vivonex before my fiasco happened. It’s unpleasant to drink, but it ensure that the body gets the nutrition it needs and the intestines have something moving through it. I heard that if nothing moves through the intestine for a prolonged period of time that the bowels shrivel up or something.
I pray that you and your son will pull through these hard times.
-Rina