Ugh. Just got some really bad news. My son had a pouch redo by Dr Remzi last Oct. First one was great for a year and then had stricture and pouchitis and separated anastomosis. He had accepted that he might have to get a permanent bag and was ready to have the pouch removed. Then we visited Remzi who said he had 80% success rate with redos and he planted a seed of hope. My son being only 18 wanted to try once more. Now 5 months later and lots of complications, Remzi doesn’t think it is going to work and is recommending excision and permanent ileo. He was ok with the ostomy. He went to prom, on roller coasters, zip lining, and cliff jumping with the ostomy. He’s just suffered so much. Stuff you wouldn’t wish on your worst enemy, never got a break. Yet he was always so strong and positive. Redo surgery was tough and I can’t imagine excision is much worse. I’m personally hopeful that this will end his misery. He is still praying for a miracle.
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