Reply to "Bad experience One year after takedown"

Hey. I also I ulcers at the connection site. I totally understand how you feel like you're in a rut. Though I do not have diarrhea, my condition has caused me to be unable to eat and have constant bleeding. My doctor was unsure what do to with the treatment because his theory was that I had ischemia and had poor blood flow to the area. Last week, I found out that it wasn't the case and am now being treated for Crohn's.

I know the frustration of finding out you're still finding problems when you already thought this was going to be a fix. For me, I knew that I was probably going to have to fight the auto-immune part of my disease somewhere down the line. I was lucky to have had 12 good years before my problems became severe. I would want to have those ulcers treated and aggressively because they could be the root of your problems. I kind of wish my doc would have been more aggressive with my treatment because I suffered two long years, but then again the diagnosis was very hard to pinpoint in my case.

Please don't give up hope. There will be ruts in your life. This is probably rut #2 in my life, but I knew that if I persisted in trying to find answers that a door will open, and it finally did for me last week. I know that I'm oversimplifying by saying that you're only a "year" in, but it's still early and there are still many roads out there to consider. I know that you will find the right path for yourself in due time. Even through your suffering, there are still good things in your life, even if you can't see them at the present. I guess for me, I like to think half full, because I'm still able to have the time of my life in Japan!

-Rina

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×