Bad experience One year after takedown

hello everyone, this is my first post and I am glad I found it. I had my third surgery, my takedown surgery in October of 16 at Mt. Sinai hospital in NYC. I had my entire large intestine removed. 

I have had nothing but problems , terrible butt burn still, I use the bathroom at least 6-12 times a day and I am on opium for diarrhea. I try and hold it but it’s pretty painful and it’s hard to hold it. 

I Recently  had a colonoscopy to check it all out and hey found some ulcerations at the staple line where they put me back together. I am going back down to get a pouchoscopy done ina week and I’m praying I don’t need to go back in for surgery again. At this point I wish I had my colostomy bag, I had much better quality of life with the bag. 

I just turned thirty and I feel like my life is stuck in a rut, we’re trying to plan a wedding and I constAntly use the Bathroom, it’s tough to go places if your worried you have to go to bathroom. it’s affecting my relationship in every way. 

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