Reply to "Back home from step 2 of 3. Numbness and loop ileo questions"

Elif posted:

Also, I came home with a loop ileostomy with peristomal skin in very bad shape. The nurses could not take care of it at the hospital. Did this happen to anyone else? I have no margin for error in changing appliance now due to this condition, and I changed my appliance 5 times in the last two days. I am using a convex flange but the pressure it applies to my abdomen causes discomfort. Will this cause problems? 

I have six months experience with a temp ileostomy, which was so easy to take care of compared to the one I have right now. I feel so sorry for anyone who had a loop stoma as their first stoma; with zero experience. 

I had the loop ileo for 3 months and it was an endless cycle of these kinds of issues.  When I was at Mount Sinai in NYC the ostomy nurses were always able to get a good seal, but when left to my own devices after discharge, I had nonstop leakage issues, constantly had to change the appliance, and the skin was raw and weeping around the stoma and a yeast infection was developing.  Fortunately, it was only 3 months dealing with this, and after takedown, it ceased being a problem and the skin healed.  But it was a total nightmare.

I am not sure exactly what access you have to an ostomy nurse, but when they did my appliance, they could do a seal that would last for a week.  That's really the only suggestion I have. Keep the skin around the ostomy as dry as you can under the circumstances. I know it's not easy. And just remember all these issues will quickly go away once you have takedown, so hang in there until then.

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