Also, I came home with a loop ileostomy with peristomal skin in very bad shape. The nurses could not take care of it at the hospital. Did this happen to anyone else? I have no margin for error in changing appliance now due to this condition, and I changed my appliance 5 times in the last two days. I am using a convex flange but the pressure it applies to my abdomen causes discomfort. Will this cause problems?
I have six months experience with a temp ileostomy, which was so easy to take care of compared to the one I have right now. I feel so sorry for anyone who had a loop stoma as their first stoma; with zero experience.
I had the loop ileo for 3 months and it was an endless cycle of these kinds of issues. When I was at Mount Sinai in NYC the ostomy nurses were always able to get a good seal, but when left to my own devices after discharge, I had nonstop leakage issues, constantly had to change the appliance, and the skin was raw and weeping around the stoma and a yeast infection was developing. Fortunately, it was only 3 months dealing with this, and after takedown, it ceased being a problem and the skin healed. But it was a total nightmare.
I am not sure exactly what access you have to an ostomy nurse, but when they did my appliance, they could do a seal that would last for a week. That's really the only suggestion I have. Keep the skin around the ostomy as dry as you can under the circumstances. I know it's not easy. And just remember all these issues will quickly go away once you have takedown, so hang in there until then.