Skip to main content

Reply to "At a Crossroads"

This is a tricky one, my personal opinion is don't give up on your colon if there is a chance.  I had UC for 10 years, then got it sorted through 'holistic' means... I was completely normal for 15 plus years until the docs recommended preventive surgery as they thought I had dysplasia, second opinion confirmed so I had the op, but once out there was no dysplasia found in the tissue they removed... Bit annoyed to say the least... 

I have a good jpouch outcome, I can eat everything, I need minimal meds, but I pine for my colon every single day.  Jpouch or ostomy is a way of coping rather than a solution.  It will probally be better than where you are, but a good day is far from a good day with a colon.

That said it's unclear why you waited this long to try all avenues to resolve your situation?  Maybe you haven't been ill for that long? Personally I did everything at the same time, diet, supplements, exercise, outlook and also meds from the docs.  If you have suffered for any length on time, when you hit a certain age (around 40 on the UK) docs will probally start advising you on the advanced risks... Personally I didn't want the op, in which case the docs didn't see the point in continued scoping if I wouldn't follow their advice, obviously I couldn't risk it without the scopes, so I was kind of forced into the op.

The point of my story is that it is possible to get better from ulcerative colitis, but also if you have been really ill with it, at some point you may need an op anyway, if only as a preventative measure.. if so being fit and healthy gives you the best chance of a good outcome.

I acknowledge my viewpoint is different to others because I had a fully functional healthy colon before the op.. if I was in a lot of pain and discomfort and at the end of my tether, if welcome the pouch in sure.

 

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×