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Reply to "Anyone else have their j-pouch because of colon/rectal cancer?"

Haha, I've always felt that it's better to eat no cookies or chips at all than to just eat ONE!  I have a different problem with the Pouch than I had with UC.  If I eat nothing at all, I do much worse, as everything becomes pure liquid and I have no control, so it leaks out.  I was actually doing great with UC when I was diagnosed with cancer, being better able to control my bathroom trips with controlled eating, or no eating at all. I couldn't believe the cancer diagnosis and went for two more opinions.  The GI who I saw last, and who had a great reputation, told me that if I don't get my colon removed, I'd be dead the following year.
Well, that got me to take it seriously and it was a more advanced than he thought it would be.  It went into two lymph nodes, but my surgeon told me that under 4 lymph nodes is like no lymph nodes, and he prepared my intestines by meshing it to the side, keeping it out of the line of radiation, so he could do the pull through about a year later, after finishing radiation and chemo.
Well, it's good to be alive 25 years later, fully functional, except for my lousy bathroom problems, which this group can relate to.  I'm still trying to figure out that perfect diet, lol!
Every day I have great hours, but I also have lousy hours.  It is what it is. 
I should add that I usually take two Imodium a day, one in the morning and one at night, and also drink Metamucil or Psyllium Husk fiber here and there on a daily basis, which firms things up, but sometimes I wonder if it firms things up too much which makes it harder to get out.  Eventually I'll figure it out, like maybe in another 10 years, haha.

Last edited by LV2Hike
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