@LV2Hike posted:I'm addicted to food, even though I'm quite slim. I wish I had more self control re food because I think I'd do much better with my pouch.
Well, it's better to be addicted to food and quite slim than addicted to food and overweight. I agree with your post that eating habits with a J Pouch can become problematic especially over time. I did not develop inflammation in my neoterminal ileum until 15 years after getting the J Pouch and this was suspected to be due to backsplash stool from the J Pouch. If I ate less, there would probably be less backsplash and less inflammation. My GI has a theory that the backsplash stool causes pooling of stool at the J Pouch inlet, which seems likely especially if one overeats, and this causes SIBO, and the SIBO causes the inflammation. And my most resistant inflammation is and was concentrated at and above the J Pouch inlet. At that time, he told me to watch sugar and carbs and I vastly reduced my consumption of both, which I believe has made a difference. Eating less probably would help as well.
To me the symptoms you describe sound like low grade pouchitis. Have you been scoped recently? As a cancer survivor you should be scoped every year. Leakage (especially at night), feelings of incomplete evacuation, and increased urgency are, for me, the hallmark pouchitis symptoms.