@Lauren Of Emerald City posted:WOW! That is crazyy!!! Clearly you do have IBD, I cannot believe the test said negative for both. I did not know it was that JACKED UP XD
That's what perplexed my GI doctors, because they had scoped me and the inflammation in my J Pouch was documented and undeniable.
At some point my second GI specialist - the wonderful Dr. Oikonnomou, the Shen protege who ultimately left Yale for the greener pastures of New York City- threw his hands up in the air and said to me, "it's inflammation no matter what we call it, and we still have to treat it." He was a big proponent in reducing sugars in my diet, something that really does help as a long term strategy in managing pouch inflammation.