@kta posted:I have issues emptying and do use water enemas way more than I would like to. I have seen one surgeon about this. She says my problem is where the pouch is connected and that I am not a redo candidate. I have a lot of inflammatory issues. I am now on Uceris - supposedly long term - as I am allergic to Canasa and cortisone suppositories quit working. I can tell you one thing, if I am told I have to have a redo or get an illeostomy, I will find the best doc out there. I am on the west coast. I hear there is a really good Fazio trained surgeon in Colorado. He will more than likely be my first choice if I need to get serious about this. For now, the Uceris seems to keep me functional. I have a new gastroenterologist and have a scope with her Nov. 4. She wants to take a good look up there and see what she can see. She comes highly recommended.
Hang in there. Find the best doctors you can find. Keep on them until you have answers.
Thanks for your reply! I hope your appointment goes well. I agree with you...finding the best doctor is so important. If I need more surgery in the future, I’ll def go somewhere else. I like my surgeon and it seems like she did a good job but I can’t help thinking that something is being overlooked. She seems to think it’s my sphincter that is the problem, and maybe she’s right, but I do wonder if something else is going on? I guess I’ll continue with this PT for now and see what happens! You hang in there too! 