@Lauren Of Emerald City posted:I am sorry to her about our suffering. Some people use catheters to empty out the pouch if it gets to problematic, I hear it works pretty good. At least you have another option in the future if you ever need that.
Would you be open to getting a permanent ileostomy if things do not work out in the future??
Are you doing better by the way???
Thanks for your reply! I’m doing ok. I just started the PT. They said it will take prob 6-8 weeks to see good results with the sphincter “massaging”. If I take the miralax every day it helps a lot! I also started taking digestive super enzymes, and strangely it seems to be helping me empty too, along with keeping my bloat waay down! When I’m having a bad day, I do use a water enema to clear me out but I may invest in the catheter instead. I think I’d do just about anything to avoid the ileostomy lol. If my jpouch didn’t work out, I’d go for the BCIR/k pouch...can’t remember if that’s what it’s called? I could live with my current situation though. It’s not ideal and frustrating at times, but it could be worse 😊