Rachel how often do you self dilate? Do you do this every evening?
I think I also have severe inflammation going on at this time. I can barely pass anything and I feel like I have this huge tennis ball in the back end and I have tons of pain. The tailbone pain is awful too. I think the connection is so tight that is why I continually get the fissures from straining to empty pouch. In short, the entire anal canal is a mess and canasa does nothing for me. This seems to be all mechanical and short of surgery, I am not sure anything will solve this issue.
Also, how did they diagnose the fistula and what were your symptoms? If humera is not working for that, what are you next steps?
Sorry! Missed this!
I try to do nightly, when I remember. lol
Sometimes I'm inflamed feeling, too, and have to resort to steroids these days, unfortunately.
Dx was with an MRI, then an exploratory to place a seton. I see my GI next month, and am hitting him up with more questions. He'd like me to stay on Humira a year, scope already scheduled for October, then re-evaluate.