Reply to "Am I really ready for J-pouch surgery?"

quote:
ke353 & Dogday - I'm so sorry you guys didn't have a choice. I do feel better knowing that I've tried all medications and supplements that my GI instructed me to try. I am truly sorry that they stopped working and some didn't work at all. Remicade is out of the question for me as well as the fecal enemas and worms. That's where I draw the line. But yes, I have a choice.


It is what it is! Remicade wasn't really a question for me, the doctor told me I needed it so I agreed to it blindly. I didn't know enough of the side effects at the time and thought it would definitely work and felt it was my only hope. If I had had the disease for longer and researched all possibilities I may have refused it as well. This is a very tricky situation. You never know what will work or how much the disease will spread/worsen. I'm under the impression that our fate is decided right when we get the disease. If it's going to be moderate-severe and not respond, it will progress no matter how early you catch it and now matter what you do.
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